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“This is the day the Lord has made. Get up, go to the ballpark and do your very best.” - Joe Martin, On Any Given Day
After being told in October 1994 that he had 20 months to live, Joe decided that he would recover, if not from the disease, then from the diagnosis. Drawing upon his Presbyterian roots and the words of Cal Ripken, Jr., Joe wrote the quote above to serve as his credo for living with Lou Gehrig's Disease (ALS) . He became determined to live as actively as possible and he deeply wanted to help others face the challenges presented by ALS. With the help of his brother, former North Carolina Governor Jim Martin, Joe helped establish the Carolinas Neuromuscular/ALS Center, the Southeast’s only comprehensive facility for the treatment of Motor Neuron Disease. On November 22, 1998, Joe positioned his wheelchair in front of his Eyegaze computer to begin writing On Any Given Day, an autobiography about life with ALS. Joe had just watched Jack Kevorkian “euthanize” a man diagnosed with ALS on a 60 Minutes television program. The man had begun to lose hope-just as Joe once had. But instead of helping the man overcome his fears and despair, Kevorkian helped end the man’s life. Joe believed that the man on 60 Minutes had not died from ALS, but rather from hopelessness and fear. Joe wanted to tell people with serious problems not how to die but how to live. Using only his eyes, Joe wrote that, with the help of understanding doctors, family members, friends, and the oversight of a loving God, people could remain—or become—fully engaged in life. For Joe, hope, love, and a sense of purpose extended his 20 months to 12 years. Those 12 years were filled with a celebration of life with his family, a dedication to improving his community and the relationships in it, and a commitment of striving for greater accommodation to the needs of people with disabilities and for affordable and better health care for people with ALS. The Joe Martin ALS Foundation is the realization of Joe Martin’s dream to help other families cope and live fully with ALS. |
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