• Grants for PALS

This listing was put together by the Charlotte ALS Clinic team.

Click here to download the listing.

• Grants for ALS Needs

ALS Association Grants

Seat Elevator Grant

https://www.healthwellfoundation.org/fund/amyotrophic-lateral-sclerosis/

https://www.livelikelou.org/als-families

https://www.racingforals.com/patient-assistant-van-fund

• Grants for Vacations / Trips

https://secondwind.org/contact-us/

https://www.dreamfoundation.org/general-dream-application-preview/

https://teamgleason.org/pals-resource/adventures/

https://inheritanceofhope.org/retreats - Grants for family vacations

• Radicava

https://www.radicava.com/patient/financial-support-options/?utm_campaign=mtpa-radicava-ors-us-bammedia-07-q2-22-cg&utm_source=google&utm_medium=paidsearch&utm_content=brand&gclid=Cj0KCQjw0tKiBhC6ARIsAAOXutnX0Ub5fk8S4Q4E0B0AKLReg9zQGfq2-J2-k2PBob4BlwAixIXZajcaAiS9EALw_wcB&gclsrc=aw.ds

• Other Grants

https://alsrideforlife.org/programs-assistance/

https://www.healthwellfoundation.org/fund/amyotrophic-lateral-sclerosis/

• ALS United NC Grant Program

$750 https://alsnc.org/who-we-are/our-care-services/chapter-grant-program/

• Home Improvement Grants

https://www.livelikelou.org/als-families (Scroll down to "Quality of Life Grants")

Medicare and Home Health Services

Information from ALS Network on how to apply for Medicare after an ALS diagnosis: click here

Range of Motion Informational Worksheet

Guide for range of motion exercises created by a person with ALS and an occupational therapist. Click here to download the guide.

Care Resources for those using Ventilators

Information put together by The Joe Martin ALS Foundation for care suggestions for those using Ventilators, including facilities that accept patients who use a vent. Click here to download the resource.

Travel Websites

• Emerging Horizons -www.emerginghorizons.com - website for traveling with disabilities.
• Therapeutic Recreation Division of Mecklenburg County Parks & Recreation - Mecklenburg County Parks & Recreation Website - Offers more than 250 recreational and leisure programs for people with disabilities.
• Wheelin’ Sportsmen - http://nwtfsc.com/174/wheelin-sportsmen - Dedicated to providing all people with disabilities the opportunity to enjoy the great outdoors, including fishing, hunting, archery, rifle and educational opportunities. Part of the National Wild Turkey Federation.

Beach Wheelchairs

• North Myrtle Beach, SC – Parks and Recreation Department - (843) 280-5570
• Myrtle Beach, SC – Parks and Recreation Department - (843) 918-1188
• Wrightsville Beach, NC – New Hanover County Parks and Recreation Department - (910) 256-7925

Helpful Books for ALS
Joe Martin ALS Foundation book recommendations, including our free downloadable eBook by Joe Martin.

• On Any Given Day by Joe Martin [ebook]
• Navigating Life with ALS [Amazon]
• Someone I love has ALS [Amazon]
• ALS - An Orientation [Amazon]
• Laugh to Death [Amazon]

Instructional Videos
Joe Martin ALS Foundation YouTube Channel: information about our programs, how to perform range of motion, and other helpful videos.

• Main Page
• Stand Pivot Transfer
• Squat Pivot Transfer
• Neck and Trunk, Passive Range of Motion
• Lower Extremity, Passive Range of Motion
• Hydraulic Patient Lift Demonstration
• Using a Draw Sheet to Move Someone in Bed
• Correctly Put on a Transfer Belt
• Components of a Hydraulic Lifter and Sling
• Transfer with a Pivot Disk

Fighting ALS for over 20 years
Neil Cottrell, President of the Joe Martin ALS Foundation, draws upon his experience of being a caregiver to share tips and methods to provide the best care for people living with ALS. Information, news, and updates that are important for people with ALS will also be provided. These Blog/Vlog (video and text with links and info) entries are short and straight to the point to help families navigate the many challenges of living with ALS. As the disease progresses, new hurdles arise, but there are tools and techniques that can help make these a little easier to overcome.

• Navigate ALS Archive
• Some Things Can't Wait
• Transfer Belt Placement
• Don't Push Your Limits - COVID 19
• Sliding Seat Tub Transfer Bench
• Do Politicians Really Listen to Us?
• I have ALS. Now What???
• ALS Advocacy Day 2019
• Tackling the Challenges of Flying with ALS

• ALS.org Scholarships

• https://vccf.academicworks.com/opportunities/315

• http://www.stepsfordoug.org/scholarships/

• http://webdc.alsa.org/site/PageNavigator/DC_Chapter/DC_6_Paula_Segalman_Scholarship.html

• This is for Florida residents who are interested in working in the medical field: https://usascholarships.com/the-sherry-murray-als-medical-futures-scholarship/

• https://www.livelikelou.org/als-families (Scroll down to "Iron Horse Scholarship")

Financial Planning

• Certified Financial Planner - offers pro bono financial planning services to ALS families.

If interested, please email [email protected].

Photography

• Free Family Photo Session | Momento Foundation

Capture meaningful moments with a professional photo session and photo box.

Click here to download flyer for more information.

Register Here

Organizing

• Complimentary Organizing – Simplicity Serves

Professional organizing services to bring peace and clarity to your space.

Apply Here

Self-Care

• Discounted Massage Therapy for CALS

CALS (Caregivers of ALS) in the Charlotte area can receive 25% off thanks to Christi, Licensed Massage Therapist.

Click here to download flyer for more information.

• Darci Pernoud, OTD. Doctorate in Occupational Therapy

https://www.backtoindependencerehab.com/our-team

• Lauren Kulp, LCSW, MSW, ESQ.

Practice Owner & Lead Therapist

Tandem Collaborative Wellness

https://www.tandemcollaborativewellness.com/

[email protected]

919-504-4213 (call/text/voicemail - confidential line)

ALS Therapy Development Institute

• The ALS Research Collaborative: https://www.als.net/arc/
• The ALS Trial Navigator: https://www.als.net/als-trial-navigator/

ALS Untangled®

• www.alsuntangled.com

The Independent PALS and Caregivers Council (IPCC)

• The Independent PALS and Caregivers Council (IPCC) is a voluntary, informal network of people living with ALS (PALS) and caregivers in the Greater Charlotte and Piedmont Triad areas. IPCC’s aim is to serve as a collective voice to share ideas and feedback with regional care service providers, advocacy groups, and ALS clinics; ensure that the voice of PALS and caregivers is heard; and advocate for coordinated, consistent, effective, and equitable services to PALS and their caregivers. IPCC holds monthly Zoom meetings and welcomes new members. For more information, reach out to Ken Menkhaus at [email protected]

Your ALS Guide

• We are here to help improve quality of life for families impacted by ALS (also known as Lou Gehrig's disease). Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.

https://www.youralsguide.com/