I know I’m not the only one who questions whether our lawmakers ever really listen to their constituents. I can see you’re nodding. Before my first visit to Washington, D.C. for ALS Advocacy Day I wondered if I was wasting time and money by trying to inform our legislators about the needed changes in laws […]
I have ALS. Now What???
Click here for: I have ALS. Now What??? – by Ken Menkhaus Description: This set of short essays is written by someone who was diagnosed with ALS in March 2018, and is written for others who have just learned they have been diagnosed with ALS. It tries to anticipate the most common issues faced by […]
ALS Advocacy Day 2019
ALS Advocacy Day/Conference provides people with ALS(PALS), their caregivers, and organizations like The Joe Martin ALS Foundation an opportunity to learn about the latest in ALS research, treatments, and to engage our Congressional representatives with legislative “asks” that are crucial for families fighting ALS. I always enjoy this event in Washington DC because I am […]