People with ALS (PALS) could be at risk for serious illness by the novel coronavirus, COVID – 19, due to diminished respiratory health, and they can also be affected in many other ways. Preparation is needed to plan for disruptions in home care, medication, supplies, etc. Here is a suggested Plan of Action to help prepare:
- Make arrangements for alternate caregivers if your primary caregiver becomes ill
- If your caregivers are from a nursing agency or they are a private duty caregiver be sure to remind them not to visit if they or someone in their family have a fever, cough, or shortness of breath
- Make an emergency contact list
- Contact your medical provider to order extra medications if necessary (for example a 90 day prescription instead of a 30 day)
- Order prescriptions by mail if possible
- Avoid crowds as much as possible
- Stock up on household supplies, food, and medical related products that you routinely use
- Prepare a room for a family member to have separate living quarters if they get sick
IF YOU GET SICK, the CDC recommends:
- Stay home and call your physician
- Call your healthcare provider and let them know about your symptoms. Tell them that you have or may have COVID-19. This will help them take care of you and keep other people from getting infected or exposed.
- If you are not sick enough to be hospitalized, you can recover at home. Follow CDC instructions for how to take care of yourself at home.
- If you develop emergency warning signs for COVID-19 get medical attention immediately. In adults, emergency warning signs*:
- Difficulty breathing or shortness of breath
- Persistent pain or pressure in the chest
- New confusion or inability to arouse
- Bluish lips or face*This list is not all inclusive. Please consult your medical provider for any other symptoms that are severe or concerning.
See our earlier post about prevention and treatment: COVID – 19 and ALS
Watch Navigate ALS with Neil: Don’t Push Your Limits – COVID 19
For more information from the Center for Disease Control and Prevention (CDC) click here: People at Risk for Serious Illness from COVID – 19
Here is a helpful video from the CDC explaining preparation: