The following services are offered at no cost thanks to the continued support of our individual and corporate donors.
- Assist with Activities of Daily Living (ADL’s)
- Exercise and Range of Motion Sessions
- Respite Care
- Volunteer Assistance
- In-Home Caregiving Training
- Care Team Set Up and Coaching
- Assistive Technology Loans and Training
- Wheelchair Accessible Transportation
- Home Assessment: Accessibility Evaluation & Planning
- Travel Planning Assistance
Our team of caring professionals have a combined experience of over 20 years in working with those with ALS. We are passionate about the work we do and the opportunity to help those with ALS.
Homecare for Active Living
Homecare aides and nurses provide independence and possibility for people living with ALS. Independence for people with ALS(PALS), in turn, enables their families to have a large measure of freedom and independence as well. That sense of independence is a critical part of facing ALS and life with confidence. The Carolinas Neuromuscular/ALS Center refers PALS in the Charlotte metro area to the Joe Martin ALS Foundation who have the greatest need for assistance.
The Joe Martin ALS Foundation provides the following services:
1. Perform Activities of Daily Living (ADLs): The most basic needs such as getting out of bed, dressing, and hygiene.
2. Exercise and ROM sessions: Exercise and range of motion (ROM) benefits PALS by improving blood circulation, reducing edema (swelling), averting contracture, and preventing blood clots.
3. Respite Care: Many PALS depend on their spouse as their sole care giver. Respite care provides care givers the opportunity to attend to their own needs such as a doctor’s appointment, grocery shopping, or a stress-relieving walk in the park and to take a break from the exhausting work of caregiving.
4. Technology for Active Living: Technological advances have greatly increased computer accessibility for people with disabilities. Assistive devices such as LCTech’s EyeGaze, ERICA, Mind Mouse, iPad’s, and Tracker2000 enable paralyzed patients to write letters or email, research, communicate with voice synthesizers, and even shop online. The Joe Martin ALS Foundation loans these accessible computers to PALS, and provides training and technical support. The foundation currently owns one of each of the assistive technologies listed above.
5. Wheelchair Accessible Transportation: The increasing cost of accessible transportation prevents disabled patients from visiting friends, going to a movie, or even making doctor appointments. We help mitigate this expense by offering transportation in the foundation’s wheelchair accessible van. The foundation works in association with the Carolinas Neuromuscular/ALS Center to ensure that all ALS patients in the Charlotte metro area are able to attend the ALS clinic and take PALS to places they need and want to go.
6. Home accessibility evaluation and planning: The Joe Martin ALS Foundation offers
planning assistance with making homes wheelchair accessible. We also offer PALS and their care givers advice regarding mobility and safety issues.
7. Travel Planning Assistance: Traveling with disabilities is challenging, but not impossible. The daunting taskof planning a vacation that requires accessible lodging and transportation should not prevent one from continuing the tradition of an annual vacation or attending the family reunion. The foundation’s staff have planned and implemented trips for paralyzed, ventilator and feeding tube-dependent patients to domestic locations as close as the local library and international destinations as far away as St. Petersburg, Russia.
8. Volunteer Assistance: We have a team of volunteers who are available to help those with ALS and their families with non-medical needs. These include preparing meals, running errands, dog-walking, baby-sitting, yard-work, home maintenance, house projects, visits and more.
9. Care Team Set Up and Coaching: Often times familes with ALS have people in their community who would like to help them. It can be hard to know how to get started. We can help identify a captain, walk them through the set up process and online tools they can use to stay organized. We also can coach on getting volunteers on board and motivated to help.
10. In-Home Caregiving Training: Our staff is available to help train those that would like to learn how to be a caregiver for someone with ALS. These sessions can be done in the home so they are customized and tailored to the person with ALS and their needs.
If you have ALS, or know someone who could benefit from these services, please contact us at 704-332-1929. The Foundation helps over 60 families a year with the services above. It is our goal to help as many families as possible with our resources and we strive to accommodate all requests for weekly home care, but these visits are limited to logistics and staff availability. We are always able to provide home assessments, answer your ALS questions, and our excellent resource HomeLifeforPALS.org is available online. Please don’t hesitate to contact us with your inquires and requests.