LIVE EVERY DAY 2023
A SPARK IN THE NIGHT: Living Life with ALS
8TH ANNUAL LIVE EVERY DAY DINNER
SEPTEMBER 7th | Charlotte, NC
LIVE EVERY DAY 2023
DONATE
Our Longest-Running Annual Fundraiser!
Join us this September 7th 2023 for Live Every Day 2023
This year, we are back in-person together for the first time since 2019! You can expect an evening of fun, inspiration, music and great food! Our goal for the evening is to raise the funds we need to provide free in-home care to 25 families who are navigating ALS, for a total goal of $125,000.
Help us meet your goal by September 7th. Click the button below to donate to support Live Every Day 2023.
Our wide range of services are always free. Thanks to your generous support, we are helping over 110 people living with ALS each year as they navigate this challenging, progressive disease.
Grab your dancing shoes and let's do it again this year!
OUR THEME
A Spark in the Night
Our theme this year is “A Spark in the Night.” This theme is meant to signal the inner spark – the ‘fight’, the deep resilience, the strength and hope - that people living with ALS demonstrate as they navigate the challenges of this progressive disease.
The “spark” is what our mission is all about at The Joe Martin ALS Foundation. We help people living with ALS (PALS) live actively (“with purpose, with joy, and with hope”) throughout their ALS journey. Our goal is to provide the resources and support PALS and their families need to overcome the often dark, overwhelming feelings following an ALS diagnosis, and to light the spark inside of them to keep on living every day.
Event Details
8TH ANNUAL LIVE EVERY DAY DINNER
SEPTEMBER 7th | Charlotte, NC
Speakers
Niki McDonie
Brien Blakley
Event Program
Passed Hors D'Oeuvres & Social Hour
Interactive Display: Living Actively with ALS
Devices and tools that help people live actively with ALS.
Welcome from Emcee Brien Blakely
Dinner - Casual Stations
Sparks for 16 Years: Our Foundation in Action for ALS
Keynote Speech
Hear from Niki McDonie about how to celebrate life and create the "spark in the night" of life's difficult circumstances. Niki is a former Disney All-Star who is living actively with ALS thanks to the care she is receiving from The Joe Martin ALS Foundation.
Music & Dancing with Live Band: "Jazz Revolution"
Let's Celebrate with Charlotte band Jazz Revolution!
Dress Code
Business or Dressy Casual
Location
Event Details
8TH ANNUAL LIVE EVERY DAY DINNER
SEPTEMBER 7th | Charlotte, NC
Speakers
Niki McDonie
Brien Blakley
Event Program
Passed Hors D'Oeuvres & Social Hour
Interactive Display: Living Actively with ALS
Devices and tools that help people live actively with ALS.
Welcome from Emcee Brien Blakely
Dinner - Casual Stations
Sparks for 16 Years: Our Foundation in Action for ALS
Keynote Speech
Hear from Niki McDonie about how to celebrate life and create the "spark in the night" of life's difficult circumstances. Niki is a former Disney All-Star who is living actively with ALS thanks to the care she is receiving from The Joe Martin ALS Foundation.
Music & Dancing with Live Band: "Jazz Revolution"
Let's Celebrate with Charlotte band Jazz Revolution!
Dress Code
Business or Dressy Casual
Location
Our Mission
The Joe Martin ALS Foundation's mission is to empower families as they face the challenge of living actively with ALS by providing home care and other services at no cost.
We Believe
We believe a strong support net can help people living with ALS (PALS) and their families obtain the best caregiving techniques, equipment, and bolster their will to fight this disease.